Contact Anne: anne at disabilityhealthaccess.com
I have a form of muscular dystrophy called Myasthenia Gravis. I first developed symptoms at the age of eight and had to navigate the complexities of the health care system for over ten years before I was diagnosed. My experiences in navigating the complexities of the health care system and identifying providers to deliver quality care has made me an advocate for people with disabilities.
As a disability advocate I emphasize working within the health care system in order to empower consumers to have a direct impact on the delivery of care. I founded Disability Health Access, LLC, in 2005, advising healthcare organizations on how to improve services for seniors and people with disabilities.
Before consulting, I was a disability manager at Inland Empire Health Plan (IEHP), a non-profit Medicaid Health Plan in Southern California. At IEHP, I helped change the approach of how health care services were delivered for people with disabilities. The work done by IEHP has been replicated by health plans throughout California and nationally.
Besides my passion for health care I am passionate about being a mother.
I became a mother in 2013 to an enchanting baby boy. The joy of my son was over shadowed by my experience navigating the health care system in ways I did not expect. My dream is to create support services for new mothers so no one has to experience what I went through.
I started my blog, Spastic Mama, to explore my joy and struggles of learning to be a mom. Along the way I will share some of my stories as a mom with a disability, not for pity, not to be an inspiration, but because it is a fundamental part of me. Besides my own blog, I also write for the Disabled Parenting Project, exploring personal and policy issues that impact my life as a parent with a disability.
My experiences as a parent with a disability are being featured in a video instillation at the California Museum's Unity Center exhibit.
Disabled Parenting Project, July 2016: "The ADA is Turning 26: My Rights as a Parent are not Protected"
Disabled Parenting Project, May 2016: "Spastic Mama: You Must Think Moments"
Disabled Parenting Project, May 2016: "Spastic Mama: It's hard for you Mommy. Let me help."
Anne is available as a source and for personal essays, opinion editorial, and reported features
Additional communication availability: Phone, text, chat, videoconference
Languages: English (Fluent)